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Wednesday, April 13th, 2005 11:56 am
1. No, we don't know why these nerves hurt. Sometimes trauma to an area (even long ago) can make the nerves more prone to getting wildly irritated. Sometimes stress is a factor. If I had back problems, she would suspect trouble at the nerve root that was affecting the ends. I have "vasospasm" in the small blood vessels of the area, and decreasing blood flow to the nerves can make them irritable. This is probably NOT a structural problem or a disease.

2. Yes, there is hope that I will run again. I have to take things very, very slowly though -- not just increasing my movement slowly and gradually, but being very gradual with applying or changing treatments.

I cried when she said there was hope.

3. Inflammation can cause purely mechanical problems. Often when they go in surgically to remove a nerve that's inflamed or has Morton's neuroma, they see that it has an inflamed bursa (sac of fluid, apparently) around it. I thought bursa were around ends of bones, and yeah that's the common understanding associated with the word "bursitis", but they can show up around nerves too. So perhaps inflammation is squeezing/pinching/rubbing the nerves in the area.

4. People's bodies do not, in general, "adjust" to anti-inflammatories like they do to narcotics. The doctor had no explanation for why I'm having rebound pain related to the anti-inflam. One thing we can try eventually is an anti-seizure drug that is frequently used for nerve pain. For now, we're switching me to a different anti-inflammatory and not doing too many things at once.

5. To learn more about a potential system-wide inflammation problem, see a rheumatologist. I told her I understand that I'm not presenting with the classic signs or symptoms of the big autoimmune diseases. She said this would be worth looking into just for peace of mind or for the sake of completeness.

6. Yes, the Myofascial Therapy Center sounds like a good idea. So does another thingy I can get at a physical therapy center in downtown San Jose (sigh): a machine of some kind that is designed to increase blood flow and calm down the "vasospasm".

So now I'm googling:

- An article on vasospasm in the brain, with some more general info. I've had no specific tests for this, but in an extremity like the foot, maybe it's easily observable by a trained physician. My feet ARE almost always cold, even when the rest of me is warm, so a circulatory problem is believable.
- Bursitis - indicates that "bursae" form in various places, not always on bone, and that different people have different numbers of them. This might explain one really really weird thing an ex-boyfriend of mine had on/in his wrist...
- Anti-seizure meds and nerve pain. Neurontin is the one Dr. O mentioned. Sadly, no anti-seizure medication is FAA-approved for pilots -- apparently regardless of whether or not I have seizures -- so trying this could mean I would never fly again.
Wednesday, April 13th, 2005 07:55 pm (UTC)
Physicians in some states, Texas included, MUST report the use anti seizure medications to the DMV. I did not find this out until after I had my craniotomy surgery but thankfully a note from my neurologist kept me from losing my drivers license. In Texas, regardless of whether or not you have had seizures, there is still a mandatory reporting law. Just information I thought you might like to know. Good luck with your decisions.
Wednesday, April 13th, 2005 08:10 pm (UTC)
Oo, thanks! I googled briefly and found nothing for California; I'll make sure to ask my doctor before attempting that medication.

I bet my anger at the medical profession -- ok, my *reasons* for it -- pale next to yours. You're in my thoughts.
Wednesday, April 13th, 2005 10:51 pm (UTC)
If that's the case, then I've been driving illegally for a year and a half. I don't think CA has that law. (Seizure meds are also sometimes used as mood stabilizers.)

Also, if all antidepressants fall into that class (can't ever fly if you've ever used them), I'm betting we have an awful lot of illegally-flying pilots in this country, given how much they're prescribed these days.
Wednesday, April 13th, 2005 11:11 pm (UTC)
I heard that about a third of people whose condition warrants a no-fly medication actually don't fly. Another third lie on the forms, and the rest who have the condition don't take their medication and fly untreated. I don't have a reference for this, but I find it believable.

I sure do feel safe with those rules looking out for me.
Thursday, April 14th, 2005 02:27 am (UTC)
I don't know about seizure meds, but CA does have the law for sleep apnea. I found this out late but was lucky. In CA if you have _untreatable_ sleep apnea they have to report it to the DMV and they'll cancel your license.
Thursday, April 14th, 2005 02:41 am (UTC)
Ooo, even if you pass a maintenance of wakefulness test and are therefore at least as good as most of the caffeine-dependent bozos out there? Or would that make it "treatable"?

I sure do feel safer knowing that of all the sleep-deprived people out there, only the ones who do it to themselves deliberately and/or are too stupid to see a doc are driving. I suppose it would explain some of what we see on the roads though. :-)