I'm sorry you are going through this. As my as my medical conditions (asthma and allergies, mostly) annoy me, it is almost a blessing to know that are not going to be cured anytime soon. All I want is someone to treat it who takes it seriously and keeps to up date. I left my last doctor because all he would do is renew prescriptions I already had. My doctor keeps trying new medicines and treatments. There's some annoyance factor there and the cost is no small deal, but at least I know we're trying, and there's a chance things will get better. That's nice.
But your situation is different, or so it seems. I don't know anything about your condition and if you'd asked me a month ago I would have been naive enough to assume there was a cure or treatment for it. But it seems there isn't, not that everybody can agree on. And getting a doctor to say 'I don't know' is not an easy thing. Man, I thought cops we're control freaks. (*weak smile*)
Sometimes going to Best Buy is so much easier than going to the doctor. You still get bad service sometimes, but if push comes to shove you can at least find the manager and point out to him that he's can either have your business for one day or for 5 years, and it's his choice. And if he still screws you over, you can tell all your friends not to go to that store. That's the hard part of having an obscure medical condition. You probably don't know ANYBODY within 20 miles of you that has the same thing. Wish you did, though, because I'm sure they would have better advice. Have you looked online for websites or communities or anything like that? I suspect you have.
You're right, though, feedback is a big part of it. And I know it's hard, but you may have to be direct right up front. If you end up switching doctors or even on your next visit to your current one, just sit there and tell him exactly how you feel and what you want. You're not interested in managing the pain or getting back feeling (or whatever) but you want to be "fixed" (or whatever it is you do want). Just tell him. Maybe even ask him how many patients he's had with this condition and what the result of his treatment was. If he can't seem to offer what you need, thank him for his time. That's awfully hard, though.
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But your situation is different, or so it seems. I don't know anything about your condition and if you'd asked me a month ago I would have been naive enough to assume there was a cure or treatment for it. But it seems there isn't, not that everybody can agree on. And getting a doctor to say 'I don't know' is not an easy thing. Man, I thought cops we're control freaks. (*weak smile*)
Sometimes going to Best Buy is so much easier than going to the doctor. You still get bad service sometimes, but if push comes to shove you can at least find the manager and point out to him that he's can either have your business for one day or for 5 years, and it's his choice. And if he still screws you over, you can tell all your friends not to go to that store. That's the hard part of having an obscure medical condition. You probably don't know ANYBODY within 20 miles of you that has the same thing. Wish you did, though, because I'm sure they would have better advice. Have you looked online for websites or communities or anything like that? I suspect you have.
You're right, though, feedback is a big part of it. And I know it's hard, but you may have to be direct right up front. If you end up switching doctors or even on your next visit to your current one, just sit there and tell him exactly how you feel and what you want. You're not interested in managing the pain or getting back feeling (or whatever) but you want to be "fixed" (or whatever it is you do want). Just tell him. Maybe even ask him how many patients he's had with this condition and what the result of his treatment was. If he can't seem to offer what you need, thank him for his time. That's awfully hard, though.