Walking funny again

[cjsmith]

I got my second set of Killer Death Injections of Doooom this morning.

As before, I pinched myself awfully hard during each one to distract myself from the pain-and-wrongness sensation. (Last time, the welts I made by pinching took four days to fade. Aren't you glad you now know this detail?) Also as before, I have the anaesthetic effect over much of my foot without benefit of actual anaesthesia. Last time, this effect took about a day to fade.

There are dark purplish dots at the entry points where the needle went in. Those haven't faded from last time, so now I look like I have measles or something. If they all stay for seven weeks I won't be able to resist taking a photo of the resultant mess. :-)

If I concentrate really hard I can walk almost-normally with my partially numb feet.

Comments

[datagoddess.livejournal.com]

Owie!!

I hope they help.

[mactavish.livejournal.com]

They don't anaesthesize the foot with cold spray first? :(

(I get cold spray for cortisone injections, it's amazing stuff.)

[cjsmith.livejournal.com]

Yes, they do. I don't feel the pinprick at the surface at all. But they're injecting deep into the interstice (ideally directly into the nerve itself) so I definitely feel that!

[cjsmith.livejournal.com]

Thanks! There's a high probability they will. Somewhere in the eighties or nineties, I think.

[barbarakitten-t.livejournal.com]

ouch...

much foot sympathy in your direction....

[cjsmith.livejournal.com]

Thanks! This is better than leaving it untreated... THAT was BAD.

[mactavish.livejournal.com]

Oooh yeah. I guess a major difference was that I was getting something soothing between bones, and you're getting something harsh on nerves.

That'd do it.

empathetic hugs

[dawnd.livejournal.com]

Unfortunately, as you know, I share your pain this morning. Just not quite the SAME pain.

(hugs)

Re: empathetic hugs

[cjsmith.livejournal.com]

Yeah, urk. Mine may be more permanent but yours definitely makes for a rottener day. Really my day's not so bad even with these thingies. I just walk funny. :) Is yours improving?

[cjsmith.livejournal.com]

Apparently anything in that area hurts a bit 'cause there's no room. Frankly, the cortisone-analogs I got there hurt worse! Do you get cortisone in places like the foot-knuckles or hand-knuckles? How owie is it?

[mactavish.livejournal.com]

From where I've gotten it so far:

The shoulders don't so much hurt as feel endless because it's the lonnnnng needle, and he comes in from behind, feels like the joint's about 5' below the surface.

The wrists are probably more like your feet are. He goes into the small bones in the hand just above the arm, and the pressure of the drug feels like the small bones are being shoved radially outward. But it's not really pain; I imagine he tries hard to avoid the nerves. There's very little room for extra in there. The big bulges I was getting on the backs of my hands, in fact, were joint fluid that built up in my hands and had nowhere to go, so worked its way to a subcutaneous storage spot.

(I also had cortisone in my back 20 years ago, but that's different.)

[mactavish.livejournal.com]

(I haven't yet had knuckle injections, and I'm not hoping for them.)

[cjsmith.livejournal.com]

There's very little room for extra in there.

Yeah, definite similarity there.

joint fluid ... worked its way to a subcutaneous storage spot.

Wow. Is that something that would have been safe to simply drain off by drawing it through a needle?

I was told that the cortisone (or cortisone-like) shots I got were limited: I could have only two (some doctors go to three) in my foot-knuckles before doctors would refuse to give me any more. Too many, apparently, and the fat pad on the bottom of the foot would start to deteriorate. Do you have limits like that on your injections, too?

[cjsmith.livejournal.com]

I hope you're never at a point where they'd be beneficial. :-/

Re: empathetic hugs

[dawnd.livejournal.com]

Yes, it's better. Then again, anything would likely be an improvement over last night, when I was rocking back and forth in pain. I really tried to put distance between me and the pain, but it wasn't working too well.

[mactavish.livejournal.com]

With RA, as it's anticipated that folks will have to have injections off and on indefinitely, we're pretty much limited to three injections anywhere on the body per year, with no more than two in any one joint. It's not good for bones.

And yes, they remove excess joint fluid by aspiration. In my case, he (for free, I love my doctor) used cold spray on it, then just slid a needle in -- it wasn't deep, as it was on the back of my hand, not in my wrist -- and withdrew as much as he could, examined it (thicker = more inflammation, mine was thick but not so much he thought cortisone was required), then massaged a bit more out through the hole. It was fairly non-dramatic, but I've got no needle-phobia at all.

Re: empathetic hugs

[cjsmith.livejournal.com]

Yikes. Yeah. Well, I'm glad it's at least better than that!

(I find that putting distance between me and the pain only works when the pain isn't all that bad to begin with. If it's REALLYBADPAIN, I achieve very little with all the mental techniques I know.)

[cjsmith.livejournal.com]

Three per year total, two of which can be in one place? That's... not much. I hope they last a while.

A good doctor is worth his weight in gold fresh homemade chocolate chip cookies.

[quasigeostrophy.livejournal.com]

Ouchie. *hugs*

I won't be able to resist taking a photo of the resultant mess. :-)

*snicker*

[mactavish.livejournal.com]

When I got my hands done (both at once) it went systemic, it was as if the RA in my hands went away, but all over, the symptoms were reduced. A week after the shots, I was able to go hiking at Pinnacles -- three miles up and down steep hills and stairs, and through a cave! -- and saw the condor. After a month, I was starting to get more symptoms everywhere, after three months, it was back to "normal". But that's three months in which I was doing considerably better. If I could have that even once or twice a year, I'd feel very lucky.

Also, my doctor's 6'5", slender, and geeky-looking (me? perv?) and trusts my intuition and body sense. When I say, "Well, I read on alt.support.arthritis that taking grapeseed extract helps with methotrexate side effects, and those folks tend to know the difference between snake oil and good medicine," he accepted that I wasn't being misled my crazy internet talk. He doesn't say, "That can't be RA, the symptoms aren't typical," he says, "You're a puzzle, let's find out how to make you better."

Anyone want a rheumatologist? I'm happy to refer.

[cjsmith.livejournal.com]

I'm body-geeky that way. One of my great regrets after getting my wisdom teeth out is I didn't do a time-lapse of the healing process.

Re: empathetic hugs

[dawnd.livejournal.com]

Yeah. I must say the NO2 worked a lot better. ;^)

[cjsmith.livejournal.com]

all over, the symptoms were reduced.

Ah, I didn't realize that. I remember you talking about the hike at Pinnacles but I didn't make the connection as to why that was possible.

Anyone want a rheumatologist? I'm happy to refer.

I have a friend who needs a good rheumatologist, but sadly she is in Ohio. I reeeeeeeally hope she finds a good doc soon.

[kimatha.livejournal.com]

I'm glad to hear you got through your second treatment ok! That's pretty cool, pinching yourself to distract from the pain. Will they hurt less as you progress through the series, do you know?

[cjsmith.livejournal.com]

The doctor said that my neuroma pain could flare up after the first or second visit, but after that it would diminish quickly, and for most people it begins to diminish immediately. That seems to imply that the nerves start to give up early in the process.

So yes, I'm guessing they'll hurt less as the series goes on. Today's went better than last week's, I thought, but that might have been just knowing what to expect.

Re: empathetic hugs

[cjsmith.livejournal.com]

Yeah, not entirely surprising. :-)

[just-cyd.livejournal.com]

you talkin' 'bout me? i'd KILL for a rheumatologist who did more than say "sorry, we've tried everything. i don't know what to do with you"

and from what little research i've done, i don't think we've really tried all that much. i think they just don't want to bother being creative. :P

[just-cyd.livejournal.com]

that sounds promising! glad you've got a viable option for treatment. wanna borrow my cane while you hobble around?

[cjsmith.livejournal.com]

you talkin' 'bout me?

Yes, I was. Even a mediocre rheumatologist would be a step up for you.

[cjsmith.livejournal.com]

Thanks! Er, got a walker? It's both feet. :)

Actually I hobble pretty well. The wacko numbness lasts only a day or so. Today I'm walking like a little Lego person (y'know, no joints) but by tomorrow I'll be more natural again.

[just-cyd.livejournal.com]

oh yeah. oddly enough, my family doc put me on an older generic anti-inflammatory, and while i'm not 100% pain free, i feel better than i did on any of the newer drugs. i'm not even going to ask why my genius specialists never thought of that...

[just-cyd.livejournal.com]

hee!! Attack of the Zombie CJ!!

here's hoping tomorrow has you feeling more normal.

[cjsmith.livejournal.com]

braaaaaains... braaaaaiiins... Hey, if the nerves in my feet are dead, does that mean I'm part zombie?

Yep, by tomorrow I should be walking like a person again. :)

[cjsmith.livejournal.com]

Heh. Sometimes geniuses are too busy being geniuses to ask if the basics have been tried already.

[redgrrl.livejournal.com]

Egads and yikes, no pics please! :)

I hope this solves things for you -- I can't imagine not being able to feel my feet...

[cjsmith.livejournal.com]

Egads and yikes, no pics please! :)

Oh, I won't post it! But I'll probably take one.

I'll be able to feel everything except the middle toe and half of each adjacent toe. Things could be worse! :)