Wednesday, June 16th, 2004 03:00 pm
I did some web surfing last night and learned a bit about my condition and its possible treatments.

[lj-cut text="This gets long. Maybe no one but me cares."]

What I have

I have "Morton's neuroma", also called "Morton neuroma" or "intermetatarsal neuroma" or oh, I forget. The nerve has surrounded itself with a fibrous mass in response to continual irritation. Some people say it's squeezed by the heads of the metatarsals; others say it's squeezed between the ground and a transverse band of ligament that holds the heads of the metatarsals together. This usually occurs in the third metatarsal space, but sometimes in the second, and very rarely in the first or fourth. I have it in both the second and third spaces on both feet. Hooray. I got the what, quadrifecta?

Morton's neuroma occurs eight to ten times as often in women as in men. So far I have zero ailments that are not gender-linked. I am so @#$!ing happy that I'm not having children and thus risking bearing a girl, I can't TELL you. I should get a Nobel Prize for that. Anyhow. Back to the feet.

I believe I also have "metatarsalgia" caused by "capsulitis", an inflammation of the capsule surrounding the heads of the metatarsals. I bet this is one reason my pain keeps doing weird things: there are two sources. The capsulitis diagnosis came first, in fact, and has been abandoned or ignored since the neuromas were found. The neuromas are proooobably the primary issue. After all, they're palpably there. They feel sort of like someone put little bundles of hair in between my bones.

What I've tried

I've tried most of the conservative treatments: get out of Stoopid Female Shoes (which I wasn't in anyhow because I'm not stoopid), rest, wear orthotics, get corticosteroid injections. The reason injections are limited to three tries is because they risk shrinking the fatty tissue that pads the bottom of the foot. That is the LAST thing I need.

One conservative treatment I have not tried is wearing a metatarsal pad. For neuromas, these should sit just behind the heads of the metatarsals. They help 1) take some pressure off the ends of those bones and 2) help spread them apart when the foot is bearing weight, so there's more room in the interstices where my nerves are getting compressed.

Today I stuck several layers of moleskin to the bottom of my left foot to simulate a metatarsal pad. (Walgreen's doesn't sell anything so weird as to sit BEHIND the ball of the foot. That might be USEFUL.) I'll see how well this works over the next few days.

I might also want to try a wider shoe. (As if shoes as wide as the ones I now have are easy to find!) The irritation may be indicating that I have to wear very loose shoes. Also, running may have changed my foot size. It can do that.

My options now

1. Wait for the Health Fairy to show up. I have found no statistics on success rates for this approach. Conversation with my physical therapist leads me to suspect they are low.

2. Multiple injections with "a sclerosing agent" such as alcohol. As best I can tell, this hardens the fibrous growth and kills the nerve. I found no statistics on success rates with this. Based on the nerve diagrams and the number of places I have the problem, I believe I should expect this to cause permanent and complete numbness of the middle toe and partial numbness of the two on either side of it.

3. Surgical "resection" (removal) of the nerve. This can be done from the top of the foot or from the bottom; what my doctor has said about aftercare makes me think he does it from the top, and I haven't the foggiest how he gets past that band of intermetatarsal ligament. That's his job to figure out ;-). I guess he pulls on the nerve. They're stretchy. Success rates for this surgery are reported at 80% in some places and as low as 60% in other places. Most? all? failures involve the truncated nerve developing another neuroma on the stump, often more painful than the original. Slight information on the web sites confirms that I should expect this to cause permanent and complete numbness of the middle toe and partial numbness of the two on either side of it.

4. The carpal tunnel approach: cut the intermetatarsal ligament. I didn't find, or don't remember, success rates for this one. It does caution about long-term instability of the forefoot. If I want to run, hike, and climb, I will resist this approach.


Well, now at least I know what to ask my doctor about. My current favorite is the alcohol injections.
Wednesday, June 16th, 2004 03:05 pm (UTC)
Ugh. (hugs)
Wednesday, June 16th, 2004 03:08 pm (UTC)
Thanks. At least this one's easy to treat. If I'm willing to have numbness, which I personally consider superior to pain, I can get this thing fixed.
Wednesday, June 16th, 2004 03:39 pm (UTC)
Kudos on finding more information, with something potentially worthwhile to try. *Hugs* and my best wishes on success with this.
Wednesday, June 16th, 2004 03:51 pm (UTC)
What a bunch of choices. Blech.

How about trying door number 2 to begin with, holding out the option of door number 3 should it not work? That's how I'd approach this.
Wednesday, June 16th, 2004 03:57 pm (UTC)
Owwwwww!

I hope you and your doctor can resolve the neuroma and pain quickly!! Gentle hugs!
Wednesday, June 16th, 2004 05:03 pm (UTC)
That's exactly my favorite approach, also.

Fortunately, if I choose door number 2, I can still drive a car. Door number 3 means no driving for six weeks. I'd rather not make a long-term medical decision on short-term issues, but I confess I'm glad I might not get door number 3.
Wednesday, June 16th, 2004 05:03 pm (UTC)
Thanks! I just wish your mystery had as easy a solution. :-(
Wednesday, June 16th, 2004 05:04 pm (UTC)
Thanks! Fortunately, "success" (for either option 2 or 3) means I can do anything my (cough) sole desires. Climb, hike, run, backpack, jump up and down on the patio, anything. YAY.
Wednesday, June 16th, 2004 05:07 pm (UTC)
For me, knowing details helps quite a bit. As frustrating as it might be to have so much weirdness going on, knowing, including the risks, the options, the benefits, and where there's no help, is better than wondering.

Given this list, I think I'd go for the alcohol injections, too. I wonder whether "Sofia (http://www.liquorama.net/index.asp?PageAction=VIEWPROD&ProdID=21283)" is an option.
Wednesday, June 16th, 2004 05:16 pm (UTC)
I am the same way. I like to gather information.

I don't know whether using Sofia would be a waste or a blessing. :-) (Saw the comments in your journal. Was very amused.)
Wednesday, June 16th, 2004 07:20 pm (UTC)
If you do end up with option 3, something to keep in mind is that numb (parts of your) feet can be injured without your being aware of it, so you need to inspect your feet frequently and probably it's not a good idea to go barefoot much. (This is something we diabetics learn, since peripheral numbness is a complication we can have; I don't have it yet, thank goodness.)
Wednesday, June 16th, 2004 07:27 pm (UTC)
Nasty choices all the way around. Prayers and good thoughts on the way. *hugs*
Wednesday, June 16th, 2004 08:16 pm (UTC)
A good point. I vaguely remember this from somewhere, but it's good to be reminded. Fortunately it would be a small area, easy to check.
Wednesday, June 16th, 2004 08:17 pm (UTC)
Thanks. At least there are choices! Things could be a lot worse.
Thursday, June 17th, 2004 06:58 am (UTC)
That's not a happy set of options :( But at least you know what's wrong now.
Thursday, June 17th, 2004 07:09 am (UTC)
Yeah, numbness would be better, though does have its own set of irritations. My mom has foot/nerve problems (more than 20 years of walking a postal route) and has had surgery, injections, acupunture...). The numbness has led to weakness in her foot/leg, although there are other complications (knee surgery due to a dog that visciously attacked her when she worked) and her feet often feel cold...

Sending good health vibes to your poor feet! Maybe the Health Fairy will follow the vibes! :)
Thursday, June 17th, 2004 09:44 am (UTC)
My feet have felt cold since I was a toddler; I hope it won't get worse. I too am getting the laundry list of knee/foot ailments. As soon as one's almost under control another pops up. I wish I could say I'll be one of those spry 90-year-olds bounding up a hiking trail, but reality disagrees with me.

Thanks for the vibes!
Thursday, June 17th, 2004 09:45 am (UTC)
Nah, it's not a great set, but it's better than it would be if there were no surgical alternatives. Having no choices is maddening.